Living with sickle cell is like riding a rollercoaster of pain, and we're always looking for something to make the ride smoother. CASGEVY aka Exa-cel, this new sickle cell treatment, just might be that something!
My Friend Jen Celebrates the Success of the first Progression of Sickle Cell Gala in Birmingham In honour of World Sickle Cell Day 2023, My Friend Jen’s extraordinary gala event captivated guests from across the United Kingdom. On Saturday 10th June, The Progression of Sickle Cell Gala took place, in celebration of the indomitable spirit of individuals living with sickle cell
Hope from Ontario, Canada shares her experience growing up with Sickle Cell SS Hi everyone, my name is Hope Olaniyan, and I'm 16 years old. I was born with sickle cell SS, a rare blood disease that affects millions of people worldwide. Growing up with sickle cell hasn't been easy, but it has taught me many valuable lessons about life and
Yes, International Women’s Day was on Monday 8th March however, we have been celebrating amazing women in the sickle cell community all week long. For those of you that read our blogs but are not on Instagram, we thought it would be a great idea to share with you all the women we have been celebrating this week. Here are
Author of My Friend Jen, Jenica Leah has been making the most of her time by supporting sickle cell whilst she is in Jamaica. Through the My Friend Jen Book Donation Project she has raised enough money to donate 200 books to the Sickle Cell Unit and also make a financial donation to Sickle Cell Support Jamaica. On Friday 5th
COVID-19: Useful Links & Advice From SCAT Centre Birmingham We know this is an extremely worrying time for you and you will have a lot of questions. Here are some key points on COVID-19 along with useful links & advice: 1. If you develop a temperature or a new persistent cough: please contact your local team. Out of hours: 111 stating clearly that you
Welcome to the sickle cell blog for the community. I'd like to start by saying THANK YOU! With most of us currently isolating / shielding due to the coronavirus outbreak, this may be a great way for us to observe our thoughts and feelings during this time.
New clinical trial for sickle cell patients now available in the US. Find out more about the clinical trial and check your eligibility.
The whole community comes together for World Book Day to celebrate the launch of the eagerly anticipated My Friend Jen sequel. The Voice - Online covers the launch of My Friend Jen – The Check Up at our celebration that took place on Thursday 5th March 2020 for World Book Day. Click here to read full article. Thank you to The Hagley at
Children's author Jenica Leah shares her story of life with sickle cell. Day 320 of the #SheCan365 Project promotes triumph as Jenica Leah shares more about her life with sickle cell and the complications she has experienced as a result of this invisible condition. "At just six weeks old, I was diagnosed with a genetic condition called Sickle Cell Anemia."Jenica Leah shares
SICKLE CELL AWARENESS | JENICA'S STORY & 'MY FRIEND JEN' This year for sickle cell awareness month, author Jenica Leah is in conversation with Madeline Wilson-Ojo discussing her journey and the My Friend Jen children's book series about sickle cell. Sharing awareness of sickle cell with answers to some original questions like "What has been the best part about producing and promoting
Missing my besties 30th birthday trip to Dubai last year due to sickle cell complications left me feeling absolutely gutted. I knew there was no way I could top a memorable trip to Dubai but when I found out that a Dubai experience would be coming back to London, I figured that's as close as I was going to get.
I've been self loving from a young age (had no idea that's what it was called) as this was how I managed to overcome a lot of my insecurities surrounding my sickle cell. Growing with this mentality has given me so much confidence that I can sometimes come across as a little bit conceited... I even once described myself as 'amazing' in an interview. Lol! Of course, I'm not once you get to know me — conceited that is— I am amazing though. Anyway back to the point,
Subscribe to my Youtube Channel for more ‘Me, Myself and Sickle Cell’ video blogs. As usual the twitter timeline gave me an interesting topic to share. Having been in a relationship which eventually ended due to the pressures of my sickle cell I believe that it is important for people to consider the health of your partner before getting into a relationship with
In the past 9 months I’ve done a whole lot of travelling; 6 different countries to be exact. That’s probably no big deal for any other individual, but it may sound slightly extreme for someone who is living with sickle cell. It has taken me years to be able to travel this much without risk and without fear; but believe me I have taken many L’s in the process.
1 YEAR OF MY FRIEND JEN "WOW!! It's been a whole year since the first self published My Friend Jen book was released; and what a year it has been. As crazy as this may sound, i only thought as far ahead as writing this book and getting it out there for others to read so i could create more awareness
https://www.youtube.com/watch?v=2S5hbNDjHLI Please donate ?? https://gogetfunding.com/my-friend-jen-donations/ The Sickle Cell Aid Foundation (SCAF) has grown tremendously in its 5 years of existence, from an extra curricular club in the Nigerian Law School, to one of the most influential sickle cell NGO's in Nigeria. My Friend Jen will be travelling to Nigeria to visit the Sickle Cell Aid Foundation, who's goal it is to "raise awareness about
Recently, an article has gone viral among the sickle cell community regarding a new pioneering treatment which has reversed a teenagers sickle cell disease by changing his DNA. I cannot even count how many posts I have been tagged in and messages I have been sent of this article. If you haven't seen it, I don't know where you have been!
As part of the Gambia Book Donation Program, we organised an event for students, teachers, Ministers and others to come and learn more about sickle cell in the hope of spreading awareness of one of the most common genetic disorders in the world. The turnout was more than we could have expected and the event was well received by everyone
Please donate ?? https://gogetfunding.com/my-friend-jen-donations/ In The Gambia, Sickle Cell Anaemia is very prevalent, however, most people do not know their status because of the lack of knowledge about the disease. My Friend Jen will be travelling to Gambia in just under 4 weeks time to visit The Sickle Cell Association, Banjul Chapter. One of their aims and objectives as the only Sickle Cell
Writing a book related to sickle cell is something that I have thought about doing for a very long time. I have always wanted to do something to create more awareness of the condition and to help others living with it, but I used to think ‘how can I help anyone else if I'm not able to help myself?’
A Day In The Life Of A Sickler: We spent the day at University College London Hospital with a 24 year old sickle cell anaemia patient having a blood exchange. A blood exchange / exchange transfusion involves slowly removing the person's blood and replacing it with fresh donor blood. This particular patient has to travel from Birmingham to London every 4 weeks to have
Hi readers, my name is Jenica Leah. Some of you may or may not know that I was born with Sickle Cell Anaemia. I never saw myself being able to share something so intimate out of fear of other people's opinions. I have come to realise that my opinion of myself is what matters more, so I am ready to face my fears. I hope that in doing so I may be able to help someone else who may be going through something similar.