New Sickle Cell Treatment Gets Thumbs Up in the UK
Living with sickle cell is like riding a rollercoaster of pain, and we’re always looking for something to make the ride smoother. CASGEVY aka Exa-cel, this new sickle cell treatment, just might be that something!
Sickle Cell SS Through The Eyes Of A 16 Year Old
Hope from Ontario, Canada shares her experience growing up with Sickle Cell SS Hi everyone, my name is Hope Olaniyan, and I’m 16 years old. I was born with sickle cell SS, a rare blood disease that affects millions of people worldwide. Growing up with sickle cell hasn’t been easy, but it has taught me […]
Sickle Cell And The Covid-19 Vaccine
How the sickle cell community feel about taking the Covid 19 vaccine.
Gaming For Sickle Cell
Meet The Founder of Melanin Gamers Raising Money For Sickle Cell Through Gaming
Supporting Sickle Cell In Birmingham
The team at OSCAR Birmingham put in an amazing effort to prepare, pack and distribute treats and care packages across Birmingham bringing joy and smiles to children, families and adults during the festive period.
In And Out Of Hospital During The Covid Pandemic
I started to hate myself and who I was. I just wanted to be normal for once and pain free. I felt like less of a woman. I wasn’t able to care for my children let alone myself. I was ready to give up on myself and everything altogether.
Working from home with Sickle Cell
never in a million years did I envision a time where my entire office would all be working from home for an extended (and what feels like an indefinite) period of time.
Surviving COVID-19: The Story Of A Sickle Cell Goddess
She is a Philanthropist and humanitarian as well as an International Cake Artist and a single mum of 4 Kids. She calls herself ‘The Sickle Cell Goddess’ due to her selfless humanitarian works in her community and this is her story of surviving COVID-19.
Life After Shielding With Sickle Cell
I’m looking forward to life after shielding with sickle cell, despite some of the anxieties I have about what the new normal will be like.
An 11 Year Olds Insight Into Sickle Cell Anaemia
Press play and watch or scroll down to read her words. We hope this will be the first of many educational blog posts by this amazing warrior.