SEA by My Friend Jen

New Sickle Cell Treatment Gets Thumbs Up in the UK

new sickle cell treatment

Living with sickle cell is like riding a rollercoaster of pain, and we’re always looking for something to make the ride smoother. CASGEVY aka Exa-cel, this new sickle cell treatment, just might be that something!

Sickle Cell SS Through The Eyes Of A 16 Year Old

16 year old Hope was born with sickle cell ss

Hope from Ontario, Canada shares her experience growing up with Sickle Cell SS Hi everyone, my name is Hope Olaniyan, and I’m 16 years old. I was born with sickle cell SS, a rare blood disease that affects millions of people worldwide. Growing up with sickle cell hasn’t been easy, but it has taught me […]

In And Out Of Hospital During The Covid Pandemic

Chandelle in hospital during the Covid-19 Pandemic

I started to hate myself and who I was. I just wanted to be normal for once and pain free. I felt like less of a woman. I wasn’t able to care for my children let alone myself. I was ready to give up on myself and everything altogether.

A Sickle Cell Documentary

Producing content that represents black people in a positive way was also very important to me and I wanted to highlight their fantastic talents and academics for world sickle cell day 2020.

Shielding With Sickle Cell

I am seeing this recommended 12 week shielding time as a bonus. This is time I never expected to have. I know they say time waits for no man but in this case, everything is pretty much on pause and I am making the most of it.

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