SEA by My Friend Jen

New Sickle Cell Treatment Gets Thumbs Up in the UK

new sickle cell treatment

Living with sickle cell is like riding a rollercoaster of pain, and we’re always looking for something to make the ride smoother. CASGEVY aka Exa-cel, this new sickle cell treatment, just might be that something!

The Progression of Sickle Cell Gala 2023

My Friend Jen Celebrates the Success of the first Progression of Sickle Cell Gala in Birmingham In honour of World Sickle Cell Day 2023, My Friend Jen’s extraordinary gala event captivated guests from across the United Kingdom. On Saturday 10th June, The Progression of Sickle Cell Gala took place, in celebration of the indomitable spirit […]

Sickle Cell SS Through The Eyes Of A 16 Year Old

16 year old Hope was born with sickle cell ss

Hope from Ontario, Canada shares her experience growing up with Sickle Cell SS Hi everyone, my name is Hope Olaniyan, and I’m 16 years old. I was born with sickle cell SS, a rare blood disease that affects millions of people worldwide. Growing up with sickle cell hasn’t been easy, but it has taught me […]

Theme for World Sickle Cell Day 2022

World sickle cell day theme 2022

Having observed and acknowledged the value of community efforts and the power that we have in numbers, this years theme announcement for World Sickle Cell Day is an opportunity for everyone to contribute on a global level.

In And Out Of Hospital During The Covid Pandemic

Chandelle in hospital during the Covid-19 Pandemic

I started to hate myself and who I was. I just wanted to be normal for once and pain free. I felt like less of a woman. I wasn’t able to care for my children let alone myself. I was ready to give up on myself and everything altogether.

Black Ballad

Award winning author Jenica Leah shared some insight into her lockdown experience and how she feels about going out now restrictions have been lifted.

Black Business Series with My Friend Jen

Jenica Leah joined podcast host Sanyu Tlks in an enlightening conversation about becoming an award winning author, setting up her publishing company and how she manages her sickle cell along side it all.

SWBH NHS Trust

COVID-19: Useful Links & Advice From SCAT Centre Birmingham We know this is an extremely worrying time for you and you will have a lot of questions. Here are some key points on COVID-19 along with useful links & advice: 1. If you develop a temperature or a new persistent cough: please contact your local team. Out […]

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