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my friend Jen sickle cell community blog

30 Years

Just a quick post of honesty cus we made it this far.

There’s been so many close calls, so many complications, so many times where I thought, is this gunna be it? With sickle cell being so random and unpredictable, even the simplest hospital admissions can end up being more life threatening than expected.

My birthday last year was spent at home in bed with my sister on speed dial because my chest was hurting and I was struggling to breathe but I was adamant that I did not want to spend my birthday in hospital. This year I’m in Miami with my girls not dwelling on the past but excited for the future.

I’ve had 30 years of ups and downs but a promise I have made to myself going forward into my thirties is to stop living in fear. Because of sickle cell I always anticipate my birthdays and wonder if I will make it to the next milestone — with good reason since I have known so many people who have died so young because of it. Instead of wondering if I’ll make it I’m going to start living like I know I will.

Here’s to my thirties and beyond. More life!


  • June 11, 2019

    Congratulations on reaching this amazing milestone! And it is an excellent achievement because as Warriors this life tests us more than others and surviving this long is incredibly, spreading your positive energy and vibe and raising awareness all of it that you do, I see it and it’s inspiring! Here’s to another thirty years and many more full of life! #sicklecellwarrior


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